Rare Disease Day is a global movement on rare diseases. It works towards fairness in social opportunities, healthcare, and access to being diagnosed and therapies for people with rare diseases.
Rare Disease Day is observed every year on 28th February (or 29th in leap years) – the rarest day of the year.
Dean joined Paul’s Place eighteen years ago and is living with Neurofibromatosis Type 1 (NF1). To read Dean’s story please click here: Dean’s story